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WARNING

THIS BLOG CONTAINS EMOTIONALLY AND GRAPHICALLY SENSITIVE MATERIAL WHICH MAY BE DISTRESSING TO SOME READERS AND FOR WHICH I APOLOGISE.  I AIM TO OFFER AS DETAILED AN  INSIGHT AS POSSIBLE INTO THIS VERY RARE DISEASE BASED ON MY OWN EXPERIENCE.

This is my Blog and observations of my beloved cousin’s battle with a very rare variant of Alzheimer, namely Posterior Cortical Atrophy or PCA, also known as Benson’s Syndrome.

It was in 2003 that my beloved cousin was diagnosed with PCA – also a terminal disease brought to general attention by the science-fiction writer Terry Pratchett. My cousin died in January 2012 aged just 67 years old.

Definition of Metamorphosis:

  • transfiguration: a striking change in appearance or character or circumstances; “the metamorphosis of the old house into something new and exciting”
  • a complete change of physical form or substance especially as by magic or witchcraft

If you wish to email me privately: metamorphosisofafamily@gmail.com

or contact my via Skype: “Metamorphosis of a Family”